GA4GH Announcements

Public Attitudes for Genomic Policy brief: trust and trustworthiness

31 August 

Trust is essential where data misuse is possible, especially in interactions between patients, the public, and genomics researchers. In this guest blog post, the Public Attitudes for Genomic Policy subgroup from the GA4GH Regulatory and Ethics Work Stream (REWS) delves into the importance of building trust for genomics research.

GA4GH 10th Plenary poster abstract submissions deadline EXTENDED

14 September 

Plenary participants attending in person are invited to submit posters for the meeting by 14 September. Posters should showcase the work of GA4GH and other related activities that will enable the responsible, voluntary, and secure sharing of genomic and health-related data. Submit poster abstracts here. Haven't registered for GA4GH 10th Plenary in Barcelona, Spain? Registration is still open!

GA4GH Mentions

NHGRI history of genomics program celebrates its 10th anniversary

1 September • National Human Genome Research Institute, USA

"The Global Alliance for Genomics and Health (GA4GH) is a standards-setting organization for genomics data sharing, similar in principle to the World Wide Web Consortium that helped build the foundations of the internet. GA4GH strives to enable international data sharing by cultivating standards that will make it easier for researchers around the world to find, access, combine, and securely analyze genomic and health-related data."

Racial discrimination during COVID led to rise in depression

29 August • Harvard Gazette, USA

"In a study in JAMA Psychiatry, the team reported that the greater the discrimination, the more pronounced the depressive symptoms…The study was supported by the International HundredK+ Cohorts Consortium (IHCC), which has been created in collaboration with the Global Alliance for Genomics and Health (GA4GH) and the Global Genomics Medicine Collaborative (G2MC) with support from the National Institute of Health and the Wellcome Trust."

Genomics and Health News

Smart software untangles gene regulation in cells

5 September • Nature, UK

Without appropriate metadata, data-sharing mandates are pointless

5 September • Nature, UK

Stanford study: 30% of opioid-naive Medicaid patients develop a dependency after prescription

2 September • MedCity News, USA

From liquid biopsies in Ghana to African cancer genomics in the cloud

2 September • Terra Blog, USA

People with this blood type may have higher risk of early stroke: study

1 September • International Business Times, USA

NYGC researchers expand and upgrade the 1000 Genomes Project resource

1 September • New York Genome Center, USA

Australian Institute of Health and Welfare gets $2M for Covid-19 linked data project

30 August • Healthcare IT News, Australia

Large sequencing effort links new genes to Crohn’s disease risk

29 August • Broad Institute of MIT and Harvard, USA

Drug discovery collaboration takes aim at novel targets

29 August • Ontario Institute for. Cancer Research, Canada

Is Australia ready for widespread DNA screening?

22 August • newsGP, Australia

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