The International Organization for Standardization (ISO) has published Phenopackets, the first clear computational way to responsibly share individual patient traits, removing a major barrier to research on disease diagnosis, treatment, and mechanism discovery. The standard was initially developed by the Global Alliance for Genomics and Health (GA4GH) and championed at ISO under the Canadian Mirror Committee to ISO/TC215/SC1 Genomics informatics, and supported by the Standards Council of Canada.
Please join us in welcomingDr Soumya Swaminathan, Chief Scientist of the World Health Organization, and Dr Michèle Ramsay, a professor at the University of the Witwatersrand in Johannesburg, to our 10th Plenary agenda. Registration is still open, and participants attending in person are also invited to submit posters for the meeting. Posters should showcase the work of GA4GH and other related activities that will enable the responsible, voluntary, and secure sharing of genomic and health-related data in the broader community. Submit poster abstractshere.
🗣 The GA4GH Code of Conductis now open for public comment. Please submit comments and feedback via Google DocoremailbyThursday, 8 September at 17:00 UTC.
"To provide funding to the Global Alliance for Genomics and Health (GA4GH) to develop standards and policies for sharing genomic and related health data, ensuring its standards are easily accessible and ready for use by global genomic programs and data-sharing initiatives."
