July 19 • Information Technology & Innovation Foundation
Policymakers should create clear rules and frameworks to allow people, firms, universities, and public agencies to share health data. For example, the Global Alliance for Genomics and Health brings together hundreds of health care, university, and biopharmaceutical and technology companies to create ways to enable the responsible, voluntary, and secure sharing of genomic and health-related data. The World Economic Forum’s Breaking Barriers to Health Data is also working to build a pilot project that uses federated data systems to share genomic data.