Powering up data discovery and access using the Data Use Ontology
May 4 • CINECA, UK
"This blog is the fourth in our Global Alliance for Genomics and Health (GA4GH) standards series, presenting an overview of how GA4GH standards are being developed and implemented by CINECA. In our April post about Passport, Mikael from CINECA WP2 explained the importance of controlled-access to protect sensitive data, federated data access in the cloud and how Passport enables researchers to authenticate - prove they are who they say they are."
The Neuro joins global ethical data sharing alliance
April 27 • Montreal Neurological Institute-Hospital, Canada
"Genomic data sharing can lead to the kinds of medical breakthroughs patients have been waiting decades for, but it must be done ethically. The Neuro has joined a global alliance to help ensure data sharing is done in a way that respects patients’ rights and keeps them informed about how their data is used."
"After twenty years studying the genome, we still don't know how it works"
May 6 • Science is News, Spain
"In this sense, international data sharing platforms are very important, such as the Global Alliance for Genomics and Health (GA4GH). Another area in which sequencing has been very important is in the case of tumors and in advancing personalized medicine programs."