For nearly two decades, the EU Standard Contractual Clauses have been a key legal mechanism for transferring personal data out of the EEA (and now, the UK). Despite this, the SCCs’ requirements for onward transfers have received little attention.
“Terra’s adoption of GA4GH standards is an important step forward,” said Helen Parkinson, head of Molecular Archival Resources at the European Bioinformatics Institute (EMBL-EBI).
Academic Papers
O’Doherty, K.C., Shabani, M., Dove, E.S. et al. Toward better governance of human genomic data. Nature Genetics 53, 2–8 (2021). https://doi.org/10.1038/s41588-020-00742-6.